The Government is preparing a reform of the benefit for care of minors affected by cancer or other serious illness (CUME), raising concern among the 18,000 families that depend on this aid.
The reform would complicate the procedures to maintain some benefits and could exclude some families that depend on this assistance.
New criteria are based solely on clinical aspects, without considering the daily reality of children who need constant care due to neurological and psychiatric diseases or behavioral disorders.
The evaluation would be referred to specialist doctors, moving it away from Primary Care that maintains a closer contact with the families.
The draft is still open, so it can still be corrected, and its objective is to expand protection to beneficiaries.
Conclusion: It is crucial that the reform ensures that benefits reach those who really need them and maintains simplicity in procedures for vulnerable families, taking into account their daily reality beyond the clinical aspect of diseases.